Thursday 25 February 2016

25.2.16

A fairly good night apart from Glenn waking me at 2am for BP etc, and my regular visits to my paper mache friends which makes my bladder gladder! But I've been retaining fluid so I'm about to be given some IV diuretics, so ship ahoy, splice the main brace and land ahoy, I'm gonna be splashing about in the bathroom! Should make my ankles look less like Rebel Wilson's and more like Cheryl Cole's. Sorry i mean Cheryl Panini Houdini Linguine or whatever her name is!
It seems I'm supposed to be weighed daily (always a negative in my life). Luckily the scales were left within my bed space so I've been doing it, but the staff haven't! And I'm supposed to have daily bloods, and its not been done since tuesday when i arrived on the ward. So I'm waiting for the vampires to come and bleed me! I may be needing a transfusion of platelets (used for clotting the blood). It seems odd when I'm taking aspirin to thin the blood, and heparin jabs every day to thin the blood, now they're thinking of giving me something to thicken it again!
Ive been booked in for the aromatherapist, she's coming to give me a treatment of some description. So excited, i could do with some pampering.
And now for a doze cos I'm shattered.
And of course i doze off and aromatherapist comes and although the HCA said she can wake me cos I'm so desperate for the treatment, she says no don't wake me and goes again. She'll try and come later or maybe tomorrow!!! That was nice!
I did have a visit from the nurse specialist though. Sammy. She's lovely, made me feel very safe and secure. She came to explain about my jabs to stimulate bone marrow to make extra stem cells and the blood tests i need to have after.
This is how i see it.....
I'm home on sunday. Tuesday, wednesday, thursday, friday, saturday, sunday, monday, tuesday, and wednesday. 9 days in all, the district nurse will come and give me 3 jabs in my tummy. Then on the monday, wednesday and friday i have to come to the MIU (Medical Investigations Unit apparently) to have blood tests, through my line of course, no pricks involved! This will then give Sammy an idea of when i have/had enough stem cells for treatment. Then from that she can work out when i should start my next session of chemo so that when my stem cells are ready it will be a week day and not the weekend when the stem cell processing department would be shut. I was surprised at that. I thought it was just a case of in for 5 days, 2 weeks off, in for 5 days, 2 weeks off.
Sorry if thats all a bit too heavy and a bit boring. Its more for my information than yours! My head is a sieve!
So my OCD is such that i have to know everything, and when things are gonna happen, and now i don't know, and won't until 11th march. How will i cope? Maybe aromatherapy will help. And when will that happen?????

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