Saturday 10 January 2015


9.1.15

Ive had a blip. A lot of us on the website have had a blip!
As you know, i have a very important job.  Being admin on the hodgkins lymphoma support group.
Well unfortunately a lady wanted to be added, so i did the deed, only to find she finished chemo in july (same as me) after 6 cycles of ABVD (same as me). She had her tumours on the top of her body (unlike me) but she was a 2b (similar to me, i was 2a).
Its back for her!
Suddenly, theres a group of us that finished the same time, same chemo, etc and of course, we all have it back now, in our heads!!!
Every little thing is now cancer!
My tummy's bloated. Its lymphoma.
Im hot and bothered. Its lymphoma.
Im fatigued. Its lymphoma.
Ive broken a nail. Its lymphoma.
We don't sit hysterically dialling the doctors surgery for an emergency appointment. We slowly fester. Anxious. Scared. Rabbit in the headlights!
In reality, we've eaten too much fibre, the heating is on too high, the chemo induced fatigue is still hanging about and we need to eat more squares of jelly for the nail and hair strength!
This is the life of a cancer survivor!
Meanwhile, many end of chemo patients are getting Complete Metabolic Response (i use capitals as i believe it deserves capitals!) as their scan results. Strangely, us paranoid patients don't jump up and down and say, 'Im still in remission too', when we see these comments. See someone relapse - we all relapse!
Anyway, onto more exciting things!
If you're waiting for excitement, you've got a long wait.
Ive been at Chris's for the weekend.
Its been nice.
Chloe's cooked some nice meals. I have sorted a few cupboards. Ive walked the dogs and not succumbed to blisters. Mud, however, is another thing. Unless I'm caked in mud when I'm at Chris's, i don't know who i am.
This morning (saturday) Chris, Chloe and myself went to the Mill at Rode to meet with Catherine and Ellen, my friend and her daughter that I've not had contact with since before 1998.
Oh my word, it was wonderful seeing them. We talked for hours. We laughed. It was so nice. So looking forward to meeting up with them again.
And a lovely evening watching The Voice and sincerely believing we are all judges and have valid points to make, and great experience in the music business. Im sure we're not the only ones!
The log burner has been roaring all evening, and log after log has been placed on top of the previous pile of ash. The temperature of the room has been that of Mexico on a hot day! Blistering heat. Making my bedroom, with the radiator in the off position permanently, and the window slightly ajar, similar to Iceland minus the geysers and the volcanos.
Tomorrow sees us with our usual roast pork and crackling cooked by Chloe and then i will wend my weary way home to some sort of peace and tranquility.
My previous panic of 'its back' has now become a panic of the past, no doubt it will rear its ugly head at some other time, but for now 'its back in the box'!

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